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    Last Updated: 01/09/2026

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    MediFind found 35 doctor with experience in Porencephaly near Ann Arbor, MI. Of these, 30 are Experienced and 5 are Advanced.

    Location
    LocationClose
    35 providers found
      Advanced in Porencephaly
      Neurosurgery | Neurology
      Advanced in Porencephaly
      Neurosurgery | Neurology
      1500 East Medical Center Dr, 2nd Floor Taubman Ctr Recp G, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Sullivan is a Neurosurgery specialist and a Neurologist in Ann Arbor, Michigan. Dr. Sullivan is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Olfactory Neuroblastoma, Pituitary Tumor, Chordoma, Balloon Sinuplasty, and Awake Craniotomy. Dr. Sullivan is currently accepting new patients.

      Advanced in Porencephaly
      Neurosurgery
      Advanced in Porencephaly
      Neurosurgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Neena Marupudi is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Marupudi has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Hydrocephalus, Tethered Cord Syndrome, Chiari Malformation Type 1, Laminectomy, and Deep Brain Stimulation.

      Advanced in Porencephaly
      Neurosurgery
      Advanced in Porencephaly
      Neurosurgery

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jason Heth is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Heth is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Glioblastoma, Astrocytoma, Brain Tumor, Awake Craniotomy, and Osteotomy. Dr. Heth is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Porencephaly
      Advanced in Porencephaly

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Altshuler is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Altshuler is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pituitary Tumor, Rathke Cleft Cyst, Craniopharyngioma, Awake Craniotomy, and Cerebral Artery Bypass Surgery. Dr. Altshuler is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Pariseau is a Pediatric Neurologist and a Neurologist in Ann Arbor, Michigan. Dr. Pariseau is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss. Dr. Pariseau is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Sleep Medicine
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Sleep Medicine

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lisa Matlen is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Matlen is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Central Sleep Apnea, Sleepwalking (Somnambulism), Obstructive Sleep Apnea, Tourette Syndrome, and Adenoidectomy. Dr. Matlen is currently accepting new patients.

      Experienced in Porencephaly
      Neurology | Pediatrics
      Experienced in Porencephaly
      Neurology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Giulia Benedetti is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Benedetti is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Lissencephaly 1. Dr. Benedetti is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angad Kochar is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Kochar is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Trisomy 13, Seizures, Generalized Tonic-Clonic Seizure, and Camptocormism. Dr. Kochar is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Jared Mott is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Mott is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Photosensitive Epilepsy, and Continuous Spike-Wave During Slow Sleep Syndrome.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Todd Hollon is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Hollon is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pituitary Tumor, Prolactinoma, Brain Tumor, Awake Craniotomy, and Septoplasty. Dr. Hollon is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Martha Carlson is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Carlson is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Autism Spectrum Disorder, Seizures, Stereotypic Movement Disorder, and Spasmus Nutans. Dr. Carlson is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Porencephaly
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Dixon is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Dixon has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Conversion Disorder, Tourette Syndrome, Migraine, and Seizures. Dr. Dixon is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Byron Thompson is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Thompson is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Arteriovenous Malformation, Thrombectomy, and Gastrostomy.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nicholas Beimer is a Neurologist in Ann Arbor, Michigan. Dr. Beimer is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss. Dr. Beimer is currently accepting new patients.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stephanie Shatzman is a Neurologist in Ann Arbor, Michigan. Dr. Shatzman is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Seizures, Memory Loss, Partial Familial Epilepsy, and Partial Seizure. Dr. Shatzman is currently accepting new patients.

      Experienced in Porencephaly
      Pediatric Neurology | Psychology | Pediatrics
      Experienced in Porencephaly
      Pediatric Neurology | Psychology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Ava Lin is a Pediatric Neurologist and a Psychologist in Ann Arbor, Michigan. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Inclusion Body Myositis, Familial Dysautonomia, Hereditary Sensory Neuropathy Type 1 (HSN1), and Septic Arthritis. Dr. Lin is currently accepting new patients.

      Experienced in Porencephaly
      Radiology | Pediatric Radiology
      Experienced in Porencephaly
      Radiology | Pediatric Radiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      David Bloom is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Bloom is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Neurogenic Bladder, Atresia of Small Intestine, Collins Pope Syndrome, Endoscopy, and Osteotomy.

      Experienced in Porencephaly
      Neurosurgery | Neurology | General Surgery
      Experienced in Porencephaly
      Neurosurgery | Neurology | General Surgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Tamil
      Accepting New Patients

      Venkatakrishna Rajajee is a Neurosurgery specialist and a Neurologist in Ann Arbor, Michigan. Dr. Rajajee is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Herniation, Chiari Malformation Type 1, Chiari Malformation, Gastrostomy, and Stent Placement. Dr. Rajajee is currently accepting new patients.

      Experienced in Porencephaly
      Neurology
      Experienced in Porencephaly
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ann Little is a Neurologist in Ann Arbor, Michigan. Dr. Little is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Inclusion Body Myositis, Polymyositis, Myasthenia Gravis, Stent Placement, and Transmyocardial Revascularization.

      Experienced in Porencephaly
      Neurology | Pediatrics
      Experienced in Porencephaly
      Neurology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Maysa Hamade is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hamade is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Rasmussen Encephalitis, Anti-NMDA Receptor Encephalitis, Encephalitis, and GAPO Syndrome. Dr. Hamade is currently accepting new patients.

      Showing 1-20 of 35

      Last Updated: 01/09/2026

      What is the definition of Porencephaly?

      Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

      When should I see a Porencephaly doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porencephaly doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porencephaly doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porencephaly doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porencephaly doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porencephaly doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porencephaly doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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